partners
The James Doss Memorial Foundation was created in 2022 by Carlee and Randy Doss. In 2018, their son James was born with a Congenital Heart Defect called Hypoplastic Left Heart Syndrome (HLHS). James was with his family for six weeks in the Cardiac ICU at Cincinnati Children’s Hospital Medical Center when he passed away. James Doss Memorial Foundation's mission is to support and uplift families who have lost children to Congenital Heart Disease. We aim to normalize the grieving process by providing assistance with funeral expenses and financial support towards creating meaningful memorials. By alleviating the burden of financial strain, we enable families to focus on honoring and remembering their beloved children.
HeartWorks was created in June 2020 to accelerate and expand the product development pioneered by the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS), founded at Mayo Clinic in 2010. HeartWorks is laser-focused on CHD research and creating positive outcomes for people born with congenital heart defects. Through our revolutionary platform, we tap the best ideas and advance them through trials and on to therapies that give children and adults with CHD an opportunity to live fulfilling lives.
Tom and Kat Hansen got married in 2006, had their daughter Audrey in 2012, and their son Harding in 2014. Tom and Kat discovered Harding had multiple severe heart defects when he was 22 weeks gestation. Harding has undergone three open-heart surgeries, in addition to many other surgeries and procedures. They live in Cincinnati, Ohio, and love going on adventures together. It is their family's mission to raise awareness for CHD families and get them the help and resources they need to live a fulfilling life in the midst of their child's battle with congenital heart disease.
The Congenital Heart Alliance of Cincinnati is made up of a dedicated group of volunteers, most of whom have been affected personally by CHDs. We are loved ones, parents, or grandparents to children born with CHDs, adults surviving with CHDs, and medical practitioners who work tirelessly to care for those with CHDs.
